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 My 5 year old has cancer
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Author Hogs & Quiches & Prayers Round-up: Previous Topic My 5 year old has cancer Next Topic
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nubidane
True Blue Farmgirl

2971 Posts

Lisa
Georgetown OH
2971 Posts

Posted - Mar 01 2011 :  08:11:38 AM  Show Profile
If you go to Elizabeth's blog, Jacob's first scan showed shrinkage of the tumors, and the ones in his lung have all but disappeared. Also, the neighborhood had a huge successful benefit dinner.
Keep up the prayers.
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FebruaryViolet
True Blue Farmgirl

4810 Posts

Jonni
Elsmere Kentucky
USA
4810 Posts

Posted - Mar 01 2011 :  08:14:27 AM  Show Profile
Wonderful news, Lisa. Funny, I was thinking about them in the shower this morning (where I do most of my thinking!). I'm glad to learn this positive news.


Musings from our family in the Bluegrass http://sweetvioletmae.blogspot.com/
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Cherime
True Blue Farmgirl

1222 Posts

Cherime
Wasilla Alaska
USA
1222 Posts

Posted - Mar 02 2011 :  08:19:46 AM  Show Profile
More shrinkage Lord until it is no more and Nem. 1:9 on it affliction shall not arise a second time.

CMF
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buffypuff
True Blue Farmgirl

1183 Posts

Claudia
Deer Park WA
USA
1183 Posts

Posted - Mar 02 2011 :  09:30:48 AM  Show Profile
Little by little. I am so glad that things are better. We take life for granted so much, and it is in situations like this, that makes one realize that life is very fragile. Please keep us posted regarding how things are progressing, so we can keep up on top of it!

Buffypuff/ Claudia ~ Farmgirl & Sister #870 ~
"It compliments God to ask great things of Him." ~ St. Theresa of Avila


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babysmama
True Blue Farmgirl

931 Posts

Elizabeth
Iowa
931 Posts

Posted - Mar 14 2011 :  5:10:00 PM  Show Profile
Another update on Jacob: he is 1/4th through his treatment now. As someone posted earlier...the first scans show that the tumors in his lungs are almost gone now so it is working!

His body is responding well to the chemo and he has not had any nausea from it. The only issues he has had so far is blood counts dropping, which is to be expected, but they always rise pretty good before his next round of chemo. He has had to have three blood transfusions due to low hemoglobin counts (another thing to be expected). Other than being a bit more tired and low key he has continued to be our happy little guy and we could not wish for more right now.

Jacob and I arrived home on Saturday after an overnight hospital stay for chemo. This Friday and next Friday he will have out-patient chemo and then on April 1st we will have another overnight stay. I just saw on our schedule that he will have a 4 day hospital stay over Easter, which is disappointing since he also missed Christmas at home but we will just tell the Easter Bunny to wait until we are home to visit us.

We pray, pray, pray that this treatment works and kills every last cancer cell in his body. We also pray that the study we are in helps keep a reaccurance from happening, as that is an all too common thing in anaplasia Wilm's Tumor. We place our trust in God to know what is best...it's scary sometimes but what other option is there?! :)

Thank you all for your continued thoughts and prays and for the little notes that Jacob still receives. One of the highlights of his day is mail time now. :)
-Elizabeth
www.trenchesofmommyhood.blogspot.com
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Meg
Moderator/Farmgirl True

974 Posts

Meg
Idaho
USA
974 Posts

Posted - Mar 15 2011 :  11:10:03 AM  Show Profile
Elizabeth, thank you for an update. You, Jacob, and family are in our thoughts. Sending extra strength and love to each of you.

MaryJane's daughter,

Meg
megan@maryjanesfarm.org
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buffypuff
True Blue Farmgirl

1183 Posts

Claudia
Deer Park WA
USA
1183 Posts

Posted - Mar 15 2011 :  11:39:23 AM  Show Profile
I agree with Meg. We stand to send you strenth against Jacob's disease. Let us not give up a drop of hope!!

Buffypuff/ Claudia ~ Farmgirl & Sister #870 ~
"It compliments God to ask great things of Him." ~ St. Theresa of Avila


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julia hayes
True Blue Farmgirl

1132 Posts

julia
medical lake wa
USA
1132 Posts

Posted - Mar 16 2011 :  12:32:02 PM  Show Profile
Elizabeth, you have made serious head-way! I'm sure life is settling anew...Cancer, as a way of life, is becoming more routine and more and more enfolded into the new normal. I hate how that's how it has to be and at the same time I never cease to be amazed how resilient and flexible the spirit is that enables one to do this. You do what you have to, indeed but eventually 'you do what you have to' becomes instilled with a terrific sense of grace. This is where you are now.

Jacob!! LOVELY guy..What a champ! I'm so glad you mentioned that he is LOVING to get mail. I'll be sure to send him something. Getting mail NEVER gets old and when life is so confined and limited these small things matter so much more!!

My thoughts are of you always. I'm holding my breath, as you are. I'm praying for days filled to overflowing with good memories and cherished moments. It's all we ever have but moreso when staring down the throat of a nasty beast!

My love to you and yours always! ~julia

being simple to simply be
Farmgirl #30
www.julia42.etsy.com
www.about-aria.blogspot.com
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birdie71
True Blue Farmgirl

254 Posts

Robin
Glendale Arizona
USA
254 Posts

Posted - Mar 18 2011 :  4:12:00 PM  Show Profile  Send birdie71 a Yahoo! Message
I am praying for all of you! (((((((((((((((Farmgirl hugs))))))))))))))))))

Robin
Farmgirl Sister #1301
Farming in the Sonoran Desert? Hmmm?!

my mama's (ceejay48) craftiness ~ www.cjscreations-ceejay.blogspot.com
my daddy's craftiness ~ www.aspenforge.com
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buffypuff
True Blue Farmgirl

1183 Posts

Claudia
Deer Park WA
USA
1183 Posts

Posted - Mar 18 2011 :  5:03:06 PM  Show Profile
Julia, I am so glad to see your post. Blessings to you and your family. :)

Buffypuff/ Claudia ~ Farmgirl & Sister #870 ~
"It compliments God to ask great things of Him." ~ St. Theresa of Avila


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Shi-anne
True Blue Farmgirl

596 Posts

Cheryl
Ada OK
USA
596 Posts

Posted - Mar 21 2011 :  10:47:36 AM  Show Profile
Continuing to pray for Jacob.

Farmgirls don't have hot flashes ~ They have power surges!
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter

13779 Posts

CeeJay (CJ)
Dolores Colorado
USA
13779 Posts

Posted - Mar 26 2011 :  10:15:19 PM  Show Profile  Send ceejay48 a Yahoo! Message
Elizabeth and Jacob,
Praying . . . have been and will continue to do so!
CJ

..from the barefoot farmgirl in SW Colorado...sister chick #665

From my Heart - www.fromacelticheart.blogspot.com

From my Hands - www.cjscreations-ceejay.blogspot.com

From my Hubby - www.aspenforge.blogspot.com
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embchicken
True Blue Farmgirl

1487 Posts

Elaine
Ocean NJ
USA
1487 Posts

Posted - Mar 27 2011 :  04:58:37 AM  Show Profile
Elizabeth~ Praying for strength for you and Jacob!

"Be the change you wish to see in the world" ~Gandhi

farmgirl sister #2822

embchicken.blogspot.com
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violetrose
True Blue Farmgirl

960 Posts

Ruth
Epworth GA
USA
960 Posts

Posted - Mar 27 2011 :  10:52:05 AM  Show Profile
Elizabeth, Praying that Jacob's temp is gone and that you will be home soon, if not already!
Hugs and prayers,
Ruth

Farmgirl Sister # 1738

God loves each one of us as if there were only one of us!

St. Augustine
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Chives
True Blue Farmgirl

232 Posts

Victoria
Shelton Washington
USA
232 Posts

Posted - Mar 27 2011 :  12:13:51 PM  Show Profile
Praying hard for you both with love. Vicki Sister 280
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laurentany
True Blue Farmgirl

3259 Posts

Laurie
Patchogue NY
USA
3259 Posts

Posted - Mar 28 2011 :  8:24:39 PM  Show Profile
Prayers Sent! May you continue winning this difficult battle!
Hugs,
Laurie
Farmgirl Sister#1403

Life is not measured by the number of breaths we take, but by the moments that take our breath away..
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buffypuff
True Blue Farmgirl

1183 Posts

Claudia
Deer Park WA
USA
1183 Posts

Posted - Apr 11 2011 :  08:39:21 AM  Show Profile
Elizabeth, got you email and will send a card to Jacob. Hope more people take up the cause for a card to come Jacob's way. Blessings your way!

Buffypuff/ Claudia ~ Farmgirl & Sister #870 ~
"It compliments God to ask great things of Him." ~ St. Theresa of Avila


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CMac
True Blue Farmgirl

1074 Posts

Connie
Ashland City TN
USA
1074 Posts

Posted - Apr 11 2011 :  08:53:41 AM  Show Profile
Sending love and light to you and your beautiful boy. Keep us posted.
Hugs on you,
Connie

"I have three chairs in my house: one for solitude, two for friendship, three for company."
Author: Henry David Thoreau
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babysmama
True Blue Farmgirl

931 Posts

Elizabeth
Iowa
931 Posts

Posted - Apr 11 2011 :  1:54:11 PM  Show Profile
Jacob is HALF WAY through his treatment now! 10 chemo sessions down, 10 more to go!
Besides one three day stay in the hospital for a fever (which I think was due to a blood transfusion) and six blood transfusions due to low Hemoglobin he has been doing great. His energy level is down somewhat but there are still times that he wrestles with his brother or jumps around the house! He has been enjoying the nice weather recently and likes to sit outside on the porch and draw.
He has another out-patient chemo this week and then a 4 day hospital stay starting on Good Friday and ending on Monday after Easter (poor boy missed Christmas and now Easter at home!). Then three weeks off (though I won't be surprised if he has to get blood in between there).
He has been enjoying all your cards and little surprises. He now asks when the mail will be here and then asks if he got anything. :) Thank you so much for making his days bright.
-Elizabeth
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embchicken
True Blue Farmgirl

1487 Posts

Elaine
Ocean NJ
USA
1487 Posts

Posted - Apr 11 2011 :  2:19:51 PM  Show Profile
Elizabeth - you and your family and especially your sweet little boy are in my prayers!

~ Elaine
"Be the change you wish to see in the world." - Gandhi

Farmgirl sister #2882
http://embchicken.blogspot.com

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violetrose
True Blue Farmgirl

960 Posts

Ruth
Epworth GA
USA
960 Posts

Posted - Apr 11 2011 :  5:53:04 PM  Show Profile
Elizabeth, Thanks so much for the update. Keeping you all in my prayers, especially Jacob. He has been such a little "trooper" through all of this - so glad he is at the half-way mark.
How is Mommy holding up? and the rest of the family? It is hard on
everyone. I am praying things are as normal as possible through this tough time.
So glad Spring is here :) It is so "life giving" to me.
Hugs and prayers,
Ruth

Farmgirl Sister # 1738

God loves each one of us as if there were only one of us!

St. Augustine
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babysmama
True Blue Farmgirl

931 Posts

Elizabeth
Iowa
931 Posts

Posted - Apr 11 2011 :  6:12:34 PM  Show Profile
When the doctors told me that this is often easier on the child going through the treatment than the parents I thought "Whatever!"

I think it's true though. Jacob takes it one day at a time. He knows he has cancer and knows that the chemo is fighting the cancer. It is straight forward for him. Which is good.

I on the other hand think too much. I worry about Jacob. I worry about the other two kids who are also losing a part of their childhood and who have a completely different life than a few months ago. I feel sorry for them all as they have a new mommy...a stressed out and not so happy mommy, though I try to pretend and make everything normal for them. I feel sorry for Ben since I blame him too much for not taking some of the stress off me. I guess I feel too guilty all of the time about things that I can not control.

But even with that said, there are days where I feel almost normal. Happy. At peace. I savor those days. I won't lie though - this sucks!! I am stressed, beyond exhausted, and sad. When I say that life can start to return to normal it is a "new normal". You get used to the sad and scared feelings...they never leave, but you get used to feeling that way. You get used to the stress and the tiredness. I think the "new normal" of cancer just means that you learn to accept all the bad things that are happening to you at the moment.

And with ALL that said, I can also say that there are many blessings to be found on this journey. Going through cancer is both a curse (a horrible one!) and yet a blessing. It makes you savor life. It makes you aware of how fragile life is and to really live each day to the fullest. It brings out the good in people. It shows you the angels and the true friends in your life (and many of you are both to me!). It's odd to say that, really, but not every moment of this journey has been a curse. I've learned more about myself and life in the past four months than I have in my whole 28 years of life. Jacob has shown me how strong a child can be and how much more brave they can be than adults. He has taught me so much and for that I am grateful.

So short answer to your question, Ruth, is that most days are hard and horrible, and yet we are still blessed. :)
-Elizabeth
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Beverley
True Blue Farmgirl

2707 Posts

Beverley
atlanta Michigan
USA
2707 Posts

Posted - Apr 11 2011 :  7:39:30 PM  Show Profile
Just know we are all thinking and praying for you and your family!!!! I pray God puts his hands upon you and comfort you!!!

Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/
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HealingTouch
True Blue Farmgirl

3448 Posts

Darlene
Kunkletown Pa
USA
3448 Posts

Posted - Apr 11 2011 :  8:11:59 PM  Show Profile  Send HealingTouch a Yahoo! Message
Elizabeth~You are all thought of and prayed for often throughout the day. None of you are far from my thoughts and you are closer to God's. He is Always with you. I have been accepted as a Chemo Angel and am waiting for my assignment. Be Blessed as you travel this road that has been chosen for you but remember you are not alone. FG Luv and Hugs!

Be Blessed,
Darlene
Sister 1922

God first, everything else after!

When Satan's knocking at your door, just say "Jesus will you get that for me?"






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craftingram
True Blue Farmgirl

528 Posts

Karin
Nashville In
USA
528 Posts

Posted - Apr 11 2011 :  8:41:48 PM  Show Profile
Elizabeth, sending prayers, hugs, love and more prayers to you and Jacob and the whole family as you go on this journey. You are in my thoughts and I pray for strength and courage for all of you.

Karin
Farmgirl #2708

Romans 8: 38,39
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